The journal addresses the expanding scope and unprecedented impact of technologies, in order to improve the critical understanding of the conceptual nature and practical consequences, and hence provide the conceptual foundations for their fruitful and sustainable developments. The journal welcomes high-quality submissions, regardless of the tradition, school of thought or disciplinary background from which they derive.
Guest Editor: Jenny Krutzinna, Digital Ethics Lab, Oxford Internet Institute, University of Oxford
Today, it is easy to donate blood or even organs, but it is virtually impossible to donate one’s own medical data. This is unacceptable. Data donation – the sharing of data by individuals and organisations (in this case also known as data philanthropy) for research, policy-making, and humanitarian purposes – is increasingly recognised as a crucial means to improve private and public life in mature information societies. Pharma companies donating their data to support research on communicable and devastating diseases offer good examples of the relevance of data donation for the welfare of our societies. At the same time, competing tensions on data control and ownership, respect of individual rights and consent, limited technical understanding, and the lack of adequate frameworks for coordination and ethical governance pose serious challenges to the donation of data and risk undermining its huge potential. Guidance to meet these challenges is urgently needed to ensure respect of users’ individual rights and consent, foster transparency and trust, as well as harness the value of data to spur scientific research, public debate, private and public wellbeing.
We request the submission of papers addressing topics including:
To submit a paper for this special issue, authors should go to the journal’s Editorial Manager:
The journal’s submission guidelines and instructions for authors can be found here.
The author (or a corresponding author for each submission in case of co- authored papers) must register into EM.
The author must then select the special article type: “Special Issue on Ethics of Data Donation” from the selection provided in the submission process. This is needed in order to assign the submissions to the Guest Editors.
Submissions will then be assessed according to the following procedure:
New Submission => Journal Editorial Office => Guest Editor(s) => Reviewers => Reviewers’
Recommendations => Guest Editor(s)’ Recommendation => Editor-in-Chief’s Final Decision =>
Author Notification of the Decision.
The process will be reiterated in case of requests for revisions.
For any further information please contact: Jenny Krutzinna
This project will investigate the possibility of a European Code for Data Donation, its feasibility, its advantages, and the possible difficulties that may be encountered in its formulation and adoption.
