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Start date:
Jun 2017
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End date:
May 2019
- Contact:
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Funder:
Microsoft
This project will investigate the possibility of a European Code for Data Donation, its feasibility, its advantages, and the possible difficulties that may be encountered in its formulation and adoption.
Overview
This project will investigate the possibility of a European Code for Data Donation, its feasibility, its advantages, and the possible difficulties that may be encountered in its formulation and adoption.
The sharing of data for medical research, policy-making, and humanitarian purposes is increasingly recognised as a crucial means to improve private and public life in mature information societies. At the same time, competing tensions on data control and ownership, respect of individual rights and consent, limited technical understanding, and the lack of adequate frameworks for coordination and ethical governance pose serious challenges to the donation of data, which remains virtually impossible today. They risk undermining its huge potential. A European ethical code for data donation will offer the necessary guidance to meet these challenges, as it will shape data donation practices to ensure respect of users’ individual rights and consent, foster transparency and trust, as well as harness the value of data to spur scientific research, public debate, private and public wellbeing.
Latest blog posts
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Call for Papers: Philosophy and Technology’s special issue on Ethics of Data Donation
Date Published: 23 October 2017 - 1:26 pm
Authors: Jenny Krutzinna
The journal addresses the expanding scope and unprecedented impact of technologies, in order to improve the critical understanding of the conceptual nature and practical ...
Read More Call for Papers: Philosophy and Technology’s special issue on Ethics of Data Donation
People
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Dr Jenny Krutzinna
Oxford Internet Institute, University of Oxford
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Professor Luciano Floridi
Oxford Internet Institute, University of Oxford
Publications
Journal articles
- Krutzinna, J., Taddeo, M. and Floridi, L. (2018) "Enabling Posthumous Medical Data Donation: A Plea for the Ethical Utilisation of Personal Health Data", Sci. Eng. Ethics. 25 (5) 1357-1387.
Blog
-
Call for Papers: Philosophy and Technology’s special issue on Ethics of Data Donation
Date Published: 23 October 2017 - 1:26 pm
Authors: Jenny Krutzinna
The journal addresses the expanding scope and unprecedented impact of technologies, in order to improve the critical understanding of the conceptual nature and practical ...
Read More Call for Papers: Philosophy and Technology’s special issue on Ethics of Data Donation