Led by Professor John Gallacher at the University of Oxford’s Department of Psychiatry, ROADMAP aims to provide the foundation for a Europe-wide real world evidence (RWE) platform in Alzheimer’s Disease by piloting multimodal data integration tools and engaging with all key stakeholder groups for consensual definition of patient outcomes, tools and methods that are actionable and relevant. ROADMAP will leverage best practice and exploit synergies with other projects and initiatives at national and European levels in pursuit of scalable and transferable solutions for dataset characterisation, outcome classification, data standards, data sourcing, software application and guidelines on the handling and interpretation of RWE data.
In parallel, the project will deepen understanding of the ethical, legal and social implications and health economics impact of real world evidence platforms for a meaningful contribution to the Big Data for Better Outcomes programme in IMI2.
This project has received funding from the Innovative Medicines Initiative 2 Joint Undertaking under grant agreement No 116020 (“ROADMAP”). This Joint Undertaking receives support from the European Union’s Horizon 2020 research and innovation programme and EFPIA.
Former Professor of Philosophy and Ethics of Information
Luciano Floridi‘s research areas are the philosophy of Information, information and computer ethics, and the philosophy of technology.
Professor of Data Ethics and Policy, Director of Research
Professor Brent Mittelstadt is a data ethicist and philosopher specializing in AI ethics, professional ethics, and technology law and policy. He is the founder/coordinator of the Governance of Emerging Technologies (GET) programme.
Former
Andrew Turner’s research area is the philosophy and sociology of health data.
Former
Jenny Krutzinna is a Postdoctoral Researcher in the Ethics of Biomedical Big Data. She currently works on data donation. Her research addresses bioethical and legal issues of new technologies and medical Big Data.
