This talk will consider how dynamic consent – and the IT that makes it possible – support participant autonomy and encourage public trust through enhanced researcher-participant relationships.

Dynamic consent is both an idea and a practice made possible through technological innovation. In practice, it is a personalised, communication portal to enable participants to become more engaged in the donation of their tissue samples and personal information for research purposes. The IT infrastructure is able to accommodate regulatory requirements around the content of participant consent as well as govern secondary research use. As such, the dynamic consent model functions as a form of ethics (or at least compliance) by design. Discussion will also consider how dynamic consent – and the IT that makes it possible – support participant autonomy and encourage public trust through enhanced researcher-participant relationships.

There are a limited number of places for this event, so please do register early to avoid disappointment. A light sandwich lunch will be provided to all registered attendees.