The Nature of Dynamic Consent: Using Technology to Improve Medical Research
Dr Karen Melham
Thursday 20 February 2014 12:30 - 14:00
Oxford Internet Institute, 1 St Giles, Oxford OX1 3JS
Please email your name and affiliation to firstname.lastname@example.org or telephone +44 (0)1865 287210.
This event is part of PhilTech - Philosophy & Technology Seminar Series
Dynamic consent is both an idea and a practice made possible through technological innovation. In practice, it is a personalised, communication portal to enable participants to become more engaged in the donation of their tissue samples and personal information for research purposes. The IT infrastructure is able to accommodate regulatory requirements around the content of participant consent as well as govern secondary research use. As such, the dynamic consent model functions as a form of ethics (or at least compliance) by design. Discussion will also consider how dynamic consent – and the IT that makes it possible – support participant autonomy and encourage public trust through enhanced researcher-participant relationships.
There are a limited number of places for this event, so please do register early to avoid disappointment. A light sandwich lunch will be provided to all registered attendees.